Family Vacation

Family Vacation

Thursday, January 20, 2011


Here is the video I made as a fundraiser for the March for Babies. Please, watch the video and then click on my March for Babies badge and donate anything you can, even $1 will help. Help me get to my goal of $1000 by May!!

Tuesday, January 18, 2011

And the verdict is....

Tracheitis... that's right, I said it, he's sick. He being Nathan of course. Nathan has been to preschool for 9 days - 45 hours, and he got sick! At least he got sick on a snow day and didn't have to miss any school for his illness. Hopefully his nurses at school will help keep him healthy and realize that he is so used to being sick that it takes a lot to bring him down.

That being said, the day was awful. While I was at the doctors office the receptionist asked me if our insurance had changed, it had not. Then she told me that it was saying that our insurance was no longer valid which means the insurance wouldn't be paying for the visit. GREAT! Just what we need, a bill for a sick visit. Then we had to go to the pharmacy, we got away with *only* 3 prescriptions this illess, and that is only because we still have most of the nebulizer medications from the last time he was sick. Then Matt had to call the insurance company and they had no idea what was wrong... how do they not know. Then Matt asked if our policy numbers had changed at the beginning of the year, well of course they did - but why do we need a new card?!?!! So we got that all figured out, then I had to call Apria and give them all the new information so they would fill our order for medical supplies. Hopefully this innsurance thing doesn't screw that all up and we still get our order in time.

Trevor is doing wonderful and loves himself more than I thought possible. We just got a new toy for him from the attic, it includes a mirror and buttons to push that make the toy sing, Trevor loves it. He smiles at himself, he does his "bobblehead move" in the mirror - he moves hsi head from side to side like a bobblehead. It's adorable and makes me laugh. He thinks his toes are amazing and giggles at them all the time. He also started screeching, which to some may be annoying but after having a baby who made no noise it's a wonderful sound.

I'm anxiously waiting for our ORL appt. in March that will determine when Nathan will have surgery to get his trach out. I am terrified for that surgery, even 13 surgeries later it's something I will never get used to but this will be a good one. 47 more days until our appt. in March, gotta love a countdown!!

Saturday, January 15, 2011

It's been a while

Well I was awful at updating a few times a week. I was even worse at updating a few times a month. Looks like life got in the way and I didn't have time to update, go figure.

Nathan has been doing great. He started school and couldn't love it anymore if he tried. He runs around all day, I swear I think they put him on a treadmill, and by the time he gets home he's so tired he can't even move.  Usually he goes to bed at 3pm and stays there until the next morning when it's time to get up and do it all over again. With him going to school I am realizing that my signing isn't as good as I would like it to be. There is a little boy in his class who is hearing but has deaf parents, he was signing to me the other morning and I had a hard time understanding him. I had Trevor with me and the other little boy was trying to tell me his mom is having a baby, I guess it's time to start looking into ASL classes.

Trevor is getting bigger by the second. He loves to eat, and blow raspberries while he's eating. He think's it's hysterical but he's the only one. The other night I had to clean my glasses because they were covered in baby food by the time he was done eating. Trevor is rolling all over the place and is desperate to be mobile so he can follow Nathan around better. I can't believe how easy a "normal" baby is to take care of. For anyone who ever think's it's hard: I dare you to take care of a very sick baby who has a trach and a feeding tube!

We are starting to get ready to go to Myrtle Beach in April with Matt's parents. I call our last trip there "Tour of the SC Hospitals" since Nathan was having problems with his feeding tube and we drove from hospital to hospital each day trying to get it fixed. Matt's Dad eventually went to the local firehouse to see where they take pediatric trauma's, assured them we weren't having an emergency, and got the closest (2 hours away) Childrens Hospital for us. Needless to say the vacation wasn't everything we wanted it to be. My one favorite memory is that everytime we said to Nathan "look at the waves" he would wave to them - it was cute. Hopefully this trip will be better, but I'm not looking forward to 12+ hours in the car with 2 kids.

I am also starting to get ready for Nathan's next surgery which will hopefully be in May, to remove his trach. I can't even begin to describe how life-changing that will be for the whole family. Hopefully it really does happen in May, sooner would be better. We go back to the Dr. in March and will hopefully know for sure when the surgery will be then.

Now I'm new to this whole blog thing so I'm going to try to figure out how to upload pictures but no promises! I also promise to try to update more often, especially when we get closer to surgery time. I decided that so many people liked our CaringBridge site that this blog would replace it. Thanks for checking in on us.