Yesterday morning I was on the phone all morning call each of Nathan's specialists, we are due to go see most of them so I needed to call and make some appointments. One of my calls was to the pediatrician to check on urine results. Turns out labcorp faxed the results to the wrong place and it took a lot longer to get them than it should have.
Both boys urine was fine, no UTI's but that left us with the fever problem for Nathan. So while I was talking to the nurse she told me his urine did show some glucose in his urine which isn't a normal finding so they needed to get some bloodwork done. Anyone who knows Nathan knows how difficult that is so we went into the ER to get him checked out there and have the people who know his veins best try to get some blood.
The doctor initially acted like he didn't want to give Nathan some light sedation for the bloodwork but the nurse and I convinced him it was best for all of us, and we were right. They got the IV and blood on the 1st try - that never happens - and then about 45 minutes later Nathan looked at his arm and said "how did that get there?" They did chest x-rays and a renal ultrasound in addition to the bloodwork. His ultrasound was normal for him, his kidney has extra fluid in it but it's been there and it was better than last time so that is good. His chest x-ray is what got us admitted though. It showed a pleural effusion on the right side. That means that he has extra fluid around his lung, it's constriciting his lung making it harder for him to breathe and causing his oxygen level to be a little lower than they would like. They did another x-ray and it's small but it's there so we need to stay until it goes away.
The doctors are assuming it's from an infection since he has had such a high fever for so long. I'm hoping they are right and it's not from anything else. To treat it they are giving him TONS of antibiotics, I think he's on 3 different ones by IV right now. So I also asked them to put him on good bacteria to help with the diarrhea that I know is coming.
For now he's OK. Neither of us slept last night. Here is a timeline of events:
10pm, he finally settled into his room and went to sleep
12pm, they came in and turned on ALL the lights in the bed next to us - it was empty at the time
1am, they turned all the lights off
2am, lights on and a roommate came
3am, coughing fit because it's so dry in here he can't cough up the crap in his lungs
4am, bloodwork - the nurse did it at this time because he needed his antibiotic
5am, I called it a wrap and just got up and started working. I did that because the Dr's were rounding on the roommate.
Needless to say I'm exhausted already but Nathan is at least sleeping. I'm nosey and heard the Dr talking to his roommate who I think is going to go home later today so maybe this afternoon we can take a nap.