Sunday we went to our first 4th of July party at my aunt's house on Crooked Lake. The boys, again, had a great time. Trevor and I ate way to much great food and Nathan played all day. The weather wasn't as great as I wish it would have been but we all still had a wonderful time. Nathan really loved knowing that even when we left we were going to Grame and Geege's house, way better than going home!
Monday was the best day of the weekend. The weather was great, sunny and warm all day. Trevor changed into his bathing suit as soon as we got to the lake (Crooked Lake again, another aunt's house) and didn't get out of it until it was dark out. The water was a little cool when he first got in and he whined a little but once he got used to it he loved swimming. He also loved crawling around in the dirt, he was covered in sand all day. Nathan also played in the sand all day, but he didn't go into the water at all. Nathan got to drive a boat a little and he had all 4 of his grandparents there with him - his ideal day!
We were surrounded by aunts, uncles and cousins who entertained both boys all day. Trevor could con all of them into feeding him all day and Nathan had them all playing with him. It's so nice to be around people who love my boys so much, and they love all the attention.
Once it was dark out Matt and Brendan did some fireworks for us. Most of us really enjoyed them but Nathan had a hard time with the sound. My Dad took Nathan into the camp and closed all the windows and doors so they were as quiet as possible. Once fireworks were over Matt took the boys home and put them to bed. Nathan had to get up early today for preschool, he is enrolled in their summer program so he doesn't lose to much ground with his therapy. Trevor slept a little late today, until 9, since he's been going to bed late this weekend. He's been sleeping a lot today cathing up on his sleep.
Since the 25th has passed it's less than 2 months until surgery. Hard to believe that in 51 days Nathan will go in for his 13th surgery and he's only 3. I know all of you are *sure* it's going to work but please forgive Matt and I if you talk to us and we're less than optimistic, we are trying not to get our hopes up. We're being realistic, 1/2 of these surgeries fail and we're trying to be prepared to be in the 50% who leave the hospital still with a trach.
Laura, there are those us who just get that it's better to be pleasantly surprised by something than to deal with crushing disappointment. I get where you and your husband are coming from. I am hoping for the best for your sweet boy, though. Isn't it his turn to come out on the positive side of the odds?
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